I am feeling much better today. I talked to the CF doctor's office about 7-8 times today. They definitely don't want me taking that new abx (antibiotic) anymore, but want me to continue with the other IV abx. They are also prescribing 750mg Cipro to take twice a day because I need to be on two different abx. They are worried about trying any other IV abx right now because the problems I have with so many strains. Cipro doesn't usually do much, or anything, for me so I'm not sure what we will accomplish. It does make me awful sick to my stomach and give me...you know. But that's much better than my face, feet, tongue being numb and wondering if I need to get to the ER again.
They also prescribed two things for me to take for the next few days until all of that abx is out of my system because I still don't have all of the feeling back in my face.
Another thing I'm not experiencing anymore is the mania and severe depression. That was very rough, especially since I have some things going on to feel manic and depressed about! lol I had all sorts of thoughts about running away and killing myself on Saturday, but luckily I also could hardly make myself move to get out of the recliner so that helped. I just sat there and cried with my tortured thoughts. I knew it wasn't right and natural and knew the medicine was doing a number on me, but that didn't put an end to what was going through my head.
Guess what happened today?
One of these fell on my foot!
The guy had delivered the full ones and set them in a different place. I was hooking up an IV and kicked one. It toppled over right onto my bare foot and now it's all swollen and I can hardly walk on it! As they say, "if it isn't one thing, it's another."
Yesterday evening I was bored and following blog-trails. It was fun and I found some new ones I want to follow. A couple of them were talking about making meals and freezing them. I plan 2 weeks meals in advance before going to the grocery store, but I think I want to try taking a few days when I'm stronger and prepare several meals at once and freeze meals to grab out when I'm having a bad day. Or when I need one for someone else.
Oh Debbie.. I wish I lived near you! I would love to come and help you and make you laugh until we can't laugh anymore! Your in my thought & prayers!
ReplyDeleteGlad you are doing some better. Yeah, Cipro and I are not good friends.
ReplyDeleteYour poor foot!! Debbi, I think you need to sit down and relax.
Oooo he doesn't sleep with us in bed!!! He has a HUGE kennel in the laundry room with our cocker spaniel, Destiny!
ReplyDeleteOUCH! Your poor foot! You are so right, if it's not one thing, it's another! Glad the rest of your body is feeling a little better today. :)
ReplyDeleteI am glad they are switching things up for you...those side effects did not sound good yesterday!! I hope the cipro works for you.
ReplyDeleteIf you don't mind my asking, what was the medicine you were on that was giving you the bad side effects?? I had a very strong IV antibiotic that had given me similar symptoms when I was going through my chemo.
your poor foot....ouch!!
Sending prayers your way,
Lisa
I'm so glad you got new meds! But I'm so sorry you had the severe depression, Debbi! And, that foot injury doesn't sound so good either. I hope you're on the mend and that you start to feel a little better soon. Always praying for you, friend.
ReplyDeleteHugs,
Amanda
Hi Debbi,
ReplyDeleteMy email is attached to my profile if you ever need it:)
My last dose of chemo was April of 2000, so I am just about 9 years cancer free.
The drug that caused me a lot of the same reactions was Vancomycin. Unfortunately, I suffered from a severe infection....my port was infected and they were pumping the chemo through my port, which caused the infection to spread throughout my entire body....it was not pretty!! Eventually they yanked the port and gave me a picc line, but I had to administer the IV Vancomycin for a long period of time and till this day, I still have ringing in my ears periodically and tingling sensations in my extremities.
As for my pictures.....well, that is one of my New Year's resolutions....I have so many pics on my computer, but not that many printed out and hanging on my walls.....I need to work on that one!!
You try and have a restful evening...I will check in tomorrow.
Lisa